A program to help you connect to people in your community!
Everyone is welcome to attend meetings being planned across Michigan and Indiana. These meetings are designed to assist people with lupus get connected with one another and find out how the Michigan Lupus Foundation is helping people better understand the disease.
Support group meetings are offered free of charge to anyone interested in participating. The lupus help line is also available during regular office hours for further information.
Click here to find a Support Group near you!
The Board of Directors of the Michigan Lupus Foundation have made a targeted effort to effectively promote the benefits of either an Individual or Corporate Membership investment to our nonprofit organization.
As a valuable source of information for an illness that is difficult to comprehend, the Michigan Lupus Foundation has been faithfully serving families affected by lupus since 1974. As the only nonprofit organization located in the state of Michigan dedicated to helping people understand how to live with lupus, we offer a number of worthwhile benefits and services for supporters that choose to invest in our group.
Individual Michigan Lupus Foundation Membership is only $25 and members receive:
Corporate Michigan Lupus Foundation Membership is only $125 and members receive:
All contributions to the Michigan Lupus Foundation are immensely helpful for us to achieve our mission of improving lupus treatment conditions in Michigan and northern Indiana with the goal of finding a cure for those affected by this devastating disease. By making a $25 Individual Membership investment, the Michigan Lupus Foundation can effectively connect with you to address your specific treatment or coping needs. For our professional contacts, a $125 Corporate Membership allows the Michigan Lupus Foundation to help build your business through over 85,000 supporters of our organization.
Together we can find a cure!
There are many different aspects to lupus and this section seeks to provide links to websites that cover a variety of topics. These sites will be of interest to those who are diagnosed with lupus, caregivers, family members, friends and healthcare professionals.
Disclaimer: These links are provided as a public service. Providing these links does not imply endorsement or support of any program or organization. The Michigan Lupus Foundation is not responsible for the content of the pages to which links are provided.
Caregivers and Families
Drug Assistance Programs
Employment and Disability
Health Related Organizations
Scientific Journals & Medical Organizations
Sun Protection and Other Products
Traveling Abroad with a Chronic Illness
There are many geographical areas within the states of Michigan and Indiana where lupus patients and their loved ones are not served by an organized support/educational group. This is evidenced by the number of calls and emails that the Michigan Lupus Foundation receives from individuals in these areas.
No one can truly understand how a person with lupus or their significant other feels as much as one who “walks the walk.” How isolating it can be to have this disease and not have someone with whom to share one’s feelings. How frightening it can be to be diagnosed with this chronic illness and not have anyone with whom to talk and cry. Talking to someone who truly understands can allay fears, concerns, frustrations, and even misinformation. Venting and sharing provides validation and normalization. How comforting it is to have the opportunity to share one’s feelings with someone who understands and who lives in the same geographical area.
We are proud to have a program entitled “The One to One Support System.” Individuals from areas that do not presently receive direct support are being contacted from our membership roster and notified of this exciting program. If you are interested, you would be asked to email or call us. A set of guidelines would be presented which would require a written agreement and permission to provide your name and phone number/email address.
Once the above is completed, each participant will receive other interested member’s names including their email addresses; and/or phone numbers. It would be the participant’s responsibility to initiate a phone call. The support person would continue to email or phone and/or set up a face-to-face visit with either one, some or all. Participants will be advised that every individual contacted may not necessarily be a good fit.
If you are interested in participating, please call 800-705-6677, or email Lisa Radtke at firstname.lastname@example.org.
Particularly in these difficult economic times, people are seeking ways to obtain:
food, clothing, subsidized housing, furniture, car repairs, ramping and other home modifications; help with utility costs; child care and equipment, and durable medical equipment, such as wheelchairs, walkers, and canes.
Others are seeking information about how to obtain:
legal advice; assistance with Medicaid; Social Security Disability; health insurance, problems with domestic violence as well as substance abuse problems.
If medication is unaffordable, and the patient meets the criteria, we have learned that every pharmaceutical company has an indigent/benefit program that will provide the prescribed medication at little or no cost to the patient. The physician, not the patient, must complete a form from the pharmaceutical company, and submit it. Hopefully, if the individual meets all criteria, he/she should receive the medications shortly. One of our volunteers who has lupus and no health insurance or prescription coverage is currently receiving a 90-day supply of a medication that retails for $900. The volunteer receives it at no charge.
For those with no health insurance, we have located free medical clinics and oftentimes free dental care in most areas of the country. While free medical clinics do not generally have specialists such as a rheumatologist, the patient can obtain basic medical care. Some of these clinics have a sliding scale and some do not.
While the Michigan Lupus Foundation office does not receive as many calls regarding resources for mental health care, the office staff has undergone training on specific questions to ask the caller and how to direct that individual to get the help they may need.
If you need help finding a resource in your community, please call the office at 800-705-6677.